Hidden childless stories, the unseen grief of invisible illness: October 2022
We were joined by Charlie Bishop, Palo Barker and Steph Penny. Often the wider world can assume that the only reasons we do not have children are failed IVF, failed adoption or didn't try. This narrative excludes many for whom getting pregnant can be life threatening or a hidden illness means one cannot conceive. Charlie, Palo and Steph all spoke about how invisible illnesses can compound and complete the unseen grief of not having children. We also asked them to share the support groups they have founded or are involved with, and resources that have helped them. We thank them all for speaking so honestly and informing us.
Show notes:
MRKH Connect a registered charity founded in 2014 supporting those with MRKH (Mayer Rokitansky Kuster Hauser) Syndrome which affects 1 in 5000 female births leading to the absence of underdevelopment of the uterus, cervix and shortened vagina. MRKH Connect has been involved in numerous research studies on mental health and the psychological impact of MRKH, runs events and aims to Connect those with MRKH together whilst providing valuable resources for the community and the public. Our Guest, Charlie, is the Director of MRKH Connect and also an advocate for MRKH and for the childless community also being part of the Tutum Journal editorial team, a magazine for, and by, childless women. Find out more by following @mrkhconnect across social media, @tutumjournal or email Charlie.
Our guest Palo supports chronic survivors at Chronic Survivors Childless Warriors and myasthenia group Diet and Myasthenia Gravis UK You can also find on the admin teams for Childless Not By Choice-Non-Religious and Childless by Circumstance, Not by Choice
Palo has a private group for Asian childless women and (optionally) chronic condition sufferers. This is a secret/private group by invitation, please contact The Full Stop and we’ll connect you with Palo.
Steph Penny is the author of Surviving Childlessness: Faith and Furbabies, and composer of Angel At My Keyboard. You can find all of Steph’s work on her website.